LymphedemaV1, Main, Exploration, bibRecord, 009359

The experience of parents of children with primary lymphoedema.

Identifieur interne : 009359 ( Main/Exploration ); précédent : 009358; suivant : 009360

The experience of parents of children with primary lymphoedema.

Auteurs : Marie Todd [Royaume-Uni] ; John Welsh ; Deirdre Moriarty

Source :

International journal of palliative nursing [ 1357-6321 ] ; 2002.

RBID : pubmed:12362128

Descripteurs français

KwdFr :
- Adaptation psychologique, Collecte de données, Enfant, Humains, Lymphoedème, Parents (psychologie), Psychologie de l'enfant.
MESH :
- psychologie : Parents.
- Adaptation psychologique, Collecte de données, Enfant, Humains, Lymphoedème, Psychologie de l'enfant.

English descriptors

KwdEn :
- Adaptation, Psychological, Child, Data Collection, Humans, Lymphedema, Parents (psychology), Psychology, Child.
MESH :
- psychology : Parents.
- Adaptation, Psychological, Child, Data Collection, Humans, Lymphedema, Psychology, Child.

Abstract

This article presents the findings of a qualitative study looking at the experiences of parents of children with primary lymphoedema. Six parents participated in the study, which was conducted in Glasgow, and verbatim transcripts of the interviews were analysed for recurring themes. The findings showed that these parents endured a difficult time before receiving a diagnosis and appropriate treatment, caused by a lack of professional awareness of the condition. Their day-to-day management of the illness was hampered by the psychological effects on the children. Parents also found a reluctance by professionals to seek information on their behalf. Professional awareness of this condition needs to be raised and improved information and support made available for those involved in the care of children with lymphoedema. The article discusses how this may be achieved.

DOI: 10.12968/ijpn.2002.8.9.10689
PubMed: 12362128

Affiliations:

Royaume-Uni

Le document en format XML

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<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Glasgow Primary Care Trust</wicri:regionArea>
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<author><name sortKey="Welsh, John" sort="Welsh, John" uniqKey="Welsh J" first="John" last="Welsh">John Welsh</name>
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<author><name sortKey="Moriarty, Deirdre" sort="Moriarty, Deirdre" uniqKey="Moriarty D" first="Deirdre" last="Moriarty">Deirdre Moriarty</name>
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<term>Psychology, Child</term>
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<term>Collecte de données</term>
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<term>Lymphoedème</term>
<term>Parents (psychologie)</term>
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<term>Data Collection</term>
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<term>Lymphedema</term>
<term>Psychology, Child</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr"><term>Adaptation psychologique</term>
<term>Collecte de données</term>
<term>Enfant</term>
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<term>Lymphoedème</term>
<term>Psychologie de l'enfant</term>
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<front><div type="abstract" xml:lang="en">This article presents the findings of a qualitative study looking at the experiences of parents of children with primary lymphoedema. Six parents participated in the study, which was conducted in Glasgow, and verbatim transcripts of the interviews were analysed for recurring themes. The findings showed that these parents endured a difficult time before receiving a diagnosis and appropriate treatment, caused by a lack of professional awareness of the condition. Their day-to-day management of the illness was hampered by the psychological effects on the children. Parents also found a reluctance by professionals to seek information on their behalf. Professional awareness of this condition needs to be raised and improved information and support made available for those involved in the care of children with lymphoedema. The article discusses how this may be achieved.</div>
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Serveur d'exploration sur le lymphœdème

The experience of parents of children with primary lymphoedema.

The experience of parents of children with primary lymphoedema.

Source :

Descripteurs français

English descriptors

Abstract

Links toward previous steps (curation, corpus...)

Le document en format XML

Pour manipuler ce document sous Unix (Dilib)

Pour mettre un lien sur cette page dans le réseau Wicri

Pour générer des pages wiki

	Serveur d'exploration sur le lymphœdème
	Attention, ce site est en cours de développement ! Attention, site généré par des moyens informatiques à partir de corpus bruts. Les informations ne sont donc pas validées.